Mary Rose Blackduck sought medical help after experiencing difficulties walking. Despite multiple visits to doctors in Yellowknife, she was initially misdiagnosed and given sleeping pills. Eventually, she traveled to the University of Alberta Hospital where she was diagnosed with ALS, a devastating nervous system disease.
ALS is a rare condition that progressively damages muscles, leading to severe physical limitations and a reduced life expectancy. Blackduck, a former broadcaster, expressed shock and dismay upon learning of her diagnosis, describing the disease as “dreadful and cruel.”
The Northwest Territories Health and Social Services Authority acknowledged the challenges in diagnosing ALS due to the absence of definitive tests and varying early symptoms. The authority also highlighted the limited neurology services in the territory, which impacts timely diagnosis and care for patients like Blackduck.
Since her diagnosis, Blackduck has been researching ALS and preparing for the challenging road ahead. She shared her concerns about losing basic functions like speech and mobility as the disease progresses. Despite the lack of a local ALS support group, she is contemplating a move to Edmonton for better resources and community support.
While uncertain about potential reimbursement for her medical journey, Blackduck remains focused on organizing her affairs and appreciating the time she has left. The N.W.T. health department advised patients to seek medical referrals for travel assistance and recommended external resources like ALS Canada and the ALS Society of Alberta for additional support.